Current Information and Emotional Support

This wonderful book provides parents with the facts and confidence to be proactive and positive about their child’s condition. It was written by an expert team of doctors, nurses, therapists, educators, and parents.

Discussions include:

• What is spina bifida?
• What causes spina bifida?
• Prenatal diagnosis
• Coping with your emotions
• Why is neurosurgery necessary?
• Urologic concerns
• Bowel management
• Orthopedic concerns
• Physical therapy, braces, and casts
• Childhood development
• Parenting your child with spina bifida
• Nurturing an emotionally healthy child
• Education
• Legal rights and insurance

Rounding out the book is a look toward the future with two inspiring chapters: one on adults with spina bifida, written by a physician with spina bifida; and the other by a young woman with spina bifida who writes about her journey toward independence.